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Floppy
Tales of a Genetic Freak of Nature at the End of the World
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Check link for latest rating. ( 164 ratings, 46 reviews)
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Format: Paperback / softback
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Floppy
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See moreOne of the first books to explore the emotional landscape of living with Ehlers-Danlos syndrome from a patient's perspective; a playful story of falling down, getting back up again, and realizing you should have gone to the hospital sooner.
Book Hero Magic formatted this description to make it easier to read. While it's new and
still learning, it may not be perfect - your
feedback is welcome!
Description
One of the first books to explore the emotional landscape of living with Ehlers-Danlos syndrome from a patient's perspective; a playful story of falling down, getting back up again, and realising you should have gone to the hospital sooner.
When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she's finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wife's mystifying health problems, her body starts to unravel in ways she can no longer ignore.
If pushing through is not the answer, what does homecoming to her floppy body even look like? Floppy by Alyssa Graybeal offers an insightful glimpse into this journey.
Book Hero Magic summarised reviews for this book. While it's new and still learning, it may not be perfect - your feedback is welcome! HOW HAS THIS BEEN REVIEWED?
Floppy by Alyssa Graybeal is an unflinching memoir that explores the complexities of living with Ehlers-Danlos syndrome, a rare connective tissue disorder. The narrative captures the intricacies of coping with chronic pain and the personal journey of coming to terms with such a life-altering condition.
Book Details
INFORMATION
ISBN: 9781636280974
Publisher: Red Hen Press
Format: Paperback / softback
Date Published: 13 July 2023
Country: United States
Imprint: Red Hen Press
Illustration: Illustrations
Audience: General / adult
DIMENSIONS
Width: 140.0mm
Height: 216.0mm
Weight: 250g
Pages: 280
Collections
About the Author
Alyssa Graybeal is a queer writer and cartoonist whose work focuses on the emotional landscape of living with chronic illness and disability, in particular the connective tissue disorder Ehlers-Danlos syndrome. Floppy: Tales of a Genetic Freak of Nature at the End of the World. She lives in Astoria, Oregon.
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