{"title":"Myra Bluebond-Langner","description":"\u003cp\u003eMyra Bluebond-Langner’s work offers profound insights into the experiences of illness and dying, particularly from the perspective of children. Her books blend rigorous research with compassionate narrative, exploring the emotional and social dimensions of serious illness.\u003c\/p\u003e\n\n\u003cp\u003eReaders interested in the human aspects of healthcare and the challenges faced by young patients will find her writing deeply moving and enlightening. Her contributions enrich the fields of education and healthcare by shedding light on private worlds often hidden from view.\u003c\/p\u003e","products":[{"product_id":"the-private-worlds-of-dying-children-by-myra-bluebond-langner-9780691028200","title":"The Private Worlds of Dying Children","description":"\u003cdiv class=\"book-description\"\u003e\n\u003cp\u003e\u003cem\u003eWinner of the Margaret Mead Award\u003c\/em\u003e\u003c\/p\u003e\n\n\u003cp\u003e\u003cstrong\u003eA classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly.\u003c\/strong\u003e\u003c\/p\u003e\n\n\u003cp\u003eThe death of a child, writes Myra Bluebond-Langner, poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die. In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child's impending death.\u003c\/p\u003e\n\n\u003cp\u003eIn contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children's role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be wilful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behaviour surrounding death.\u003c\/p\u003e\n\u003c\/div\u003e","brand":"NewSouth Books","offers":[{"title":"Default Title","offer_id":47384048304364,"sku":"9780691028200","price":82.0,"currency_code":"NZD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0705\/7784\/8556\/files\/78d2cb1980b5bc52e80579b45a809286.jpg?v=1773529656"},{"product_id":"in-the-shadow-of-illness-by-myra-bluebond-langner-9780691050799","title":"In the Shadow of Illness","description":"\u003cdiv class=\"book-description\"\u003e\n\u003cp\u003eWhat is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion.\u003c\/p\u003e\n\n\u003cp\u003e\u003cem\u003eThe Private Worlds of Dying Children\u003c\/em\u003e, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, \u003cem\u003eIn the Shadow of Illness\u003c\/em\u003e, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase.\u003c\/p\u003e\n\n\u003cp\u003eIn these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents.\u003c\/p\u003e\n\n\u003cp\u003eSince the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.\u003c\/p\u003e\n\u003c\/div\u003e","brand":"NewSouth Books","offers":[{"title":"Default Title","offer_id":47431028834540,"sku":"9780691050799","price":92.0,"currency_code":"NZD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0705\/7784\/8556\/files\/9780691050799.jpg?v=1774558078"}],"url":"https:\/\/bookhero.co.nz\/collections\/myra-bluebond-langner.oembed","provider":"Book Hero","version":"1.0","type":"link"}